Tag Archives: challenges

My Faith and God’s Faithfulness

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When I think about God, I see myself as if I am forever a child.

I have been asked several times already how I have been able to still smile and to stay happy after everything that has happened in my life. I have been praised many times for being a brave and strong person, for being a woman of God and for having a strong faith in God.

The truth is that I am not always brave and strong. I get scared and anxious many times. I may be smiling but I am not always happy when I smile. I also feel sad and I also get depressed.

The truth is that I also lose my faith in God from time to time. I question Him. I complain to Him. I argue with Him. Sometimes, I just want to give up and that if I can stop myself from breathing, I would.

But then, I always feel that God have never given up nor will he ever give up on me. I feel like He has always remained and will always stay faithful to me.

If anyone will ask me how I can say or prove that God is faithful to me, I don’t know but I strongly feel it deep inside.

What has happened to me these past few months was not the only time when I felt like life and the world have been conspiring to force me to simply give up. I have been through family crises, death of a loved one, dangers, failures, heartbreaks, illnesses and people’s harsh judgments — you know, those moments in life when I could just let my spirit be crushed into billions of bits and pieces.

Yes, there were thousands of times when I was already on the edge and I was too certain and prepared to jump off the cliff.

And then, instead of falling, it felt like I would just be floating until my feet would land on a better ground. It would always feel like I am being saved. Or better yet, I am presented with a great amount of hope… as if I am being told that there are still more beautiful days and years ahead of me.

So what has happened to me these past few months has just been another chapter in my life where God has shown me his love and faithfulness.

After all these months when I was losing hope and I was scared of not being able to look after my sons again, I am back to being the mom that I planned to be although my younger boy has still been spending days in the childcare centre.

Today, I have been discharged from physiotherapy. Next week might mark my final occupational therapy session. Although there are still tests to be done and even if I would still need to be seen by a dietitian and the neurologists, I feel really glad now that I can do almost everything that I used to do.

Indeed, God has always been faithful to me.

In my moments of fear
Through every pain Every tear
There’s a God who’s been faithful to me
When my strength was all gone
When my heart had no song
Still in love, He’s proved faithful to me.
Every word He’s promised is true
What I thought was impossible I see my God do

He’s been faithful, Faithful to me
Looking back, His love and mercy I see.
Though in my heart I have questioned, even failed to believe He’s been faithful, faithful to me.

(He’s Been Faithful by Brooklyn Tabernacle Choir)

How Am I?

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When I am asked “How are you?” nowadays, I honestly don’t know how I should answer that question.

How am I in terms of my health? Hmmm… I can say that I am so much better and stronger now as compared to how I was in January and February.

How am I? How do I feel nowadays? I can say that I can still find reasons to be happy, most especially when my sons are around. But there is one thing that I should be honest about.

I’ve been anxious and sometimes depressed.

Who wouldn’t be anxious when more than three months have already passed yet my condition isn’t clear until now? Who wouldn’t be anxious when I’ve seen worse result of a repeat blood test yet I’m still waiting for my turn on a test that might most likely confirm my condition? Who wouldn’t be anxious when I was supposed to undergo a test yet I received a call hours before informing me that the machine broke down and that the test would be moved a month after?

Who wouldn’t be anxious now that I learnt that the AChR level in my bloodstream had doubled up in just a matter of two months? (Here’s What is AChR?) The first AChR blood test done returned a 2.4 units result and the repeat test returned a 4.8 units result. Acceptable level is less than 0.4 units. This was the blood test result that made my neurologists think that I have Myasthenia Gravis instead of Guillain-Barré Syndrome. (Here’s What’s Myasthenia Gravis?)

Yes, with the help of all the therapies that I’ve been going through, I have been better and stronger nowadays yet there have been days when I would feel all the initial symptoms back once I get tired.

Yes, I have graduated from using a walking frame but I still need to use a walking stick and I have been prescribed with a pair of distance eyeglasses. And I am still not allowed to be out and about without an adult companion. How many 35-year-olds have been required to walk with a stick and eyeglasses and required to have an adult companion? I am still thankful for the progress that I have made in the past few weeks though. But, honestly, it is hard!

Required when I’m out and about plus an adult companion

Who wouldn’t be depressed when you have two young adorable boys yet you cannot run around a park with them? Who wouldn’t be depressed when you would want to take them to swimming yet you can’t because no one can give you an assurance that you can be safe when you go for a swim?

Who wouldn’t be depressed when you’re thirty-five yet you have to depend on other adults around you? Who wouldn’t be depressed when you want to believe that you’ve been recovering well yet many people treat you and look at you like you are a very fragile item?

Who wouldn’t be depressed when all you want to do every single day is to just do all the things that you would normally do yet you have to undergo physiotherapy, occupational therapy plus talk therapy (psychotherapy) almost every day then you have to be checked by a dietician and speech & language therapist every now and then? That’s exhausting yet I am still grateful that I am being looked after very well by this awesome rehab team.

All these things plus some issues on the sidetrack have made me feel anxious and depressed yet I am still so thankful for all the help and blessings that I have been receiving.

So how am I nowadays? I am not really OK yet I am still fighting and trying to look fine. And I’m still looking forward for what is beyond all these challenges. After all, life must go on!

 

The Labyrinth in My Mind

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I’ve been wanting to write since after my appointment with my doctors earlier today. There’s so much that I would like to write. But I don’t know how to start. I don’t know exactly what to write about.

 

Should I write about exactly what the doctors discussed with me? Should I write about the special blood test result that they already received from UK and Australia?

 

Should I write about my single-fibre EMG and Nerve Conduction tests that were done earlier? About how it felt to have a needle inserted into my muscles and being moved around my muscles with those tingling electric shocks?

 

Should I write about acetylcholine? And what should I write about acetylcholine? Its formula or IUPAC name or molar mass or its chemical structure that I learnt from Organic Chemistry and Biochemistry classes back in Uni? Or should I write about how it was discussed by my doctors today?

 

Should I write about Myasthenia Gravis? What about that? About how it can present itself as Guillain-Barré Syndrome? About the medicines that I might need to take, which I hope I wouldn’t have to because once I take such then there’s another medicine to take to prevent the side effects of the main medicine?

 

Should I write about me having to wait for another set of days until the other special blood test results arrive from UK? Or about the scan that should be done on my thymus gland and why it should be done?

 

If someone dares to get into and to explore inside my mind now, he or she might feel how it is to be in a labyrinth.

 

Just when I thought that I have been recovering big time from Guillain-Barré Syndrome, the doctors discussed with me what my condition has been most likely instead of GBS.  And as if GBS was neither rare nor complex enough, the doctors consider that my condition is the rarer and more complex one. The truth is that even if I’ve never wanted to have GBS, I’d rather have it than MG.

 

Looking at the bright side, at least my doctors don’t simply make me take any medications unless all symptoms and test results perfectly match one another. And this whole thing has made me witness the real life “Grey’s Anatomy” (Neurology edition).

 

I’m still hoping and praying for the best.

Every Cloud Has A Silver Lining

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“Somehow, you need to cling to your optimism. Always look for the silver lining. Always look for the best in people. Try to see things through the eyes of a child. See the wonder in the simplest things. Never stop dreaming. Believe anything is possible.”
Richie Sambora

 

I am not always an optimist. I have my dark days too. I get stuck in dark tunnels too. When I cry, I cry hard and I cry for a long time…quietly. I cry when the whole world is asleep…

So that when everybody wakes up the next morning, all they see on my face is a smile… the smile of victory. I smile because deep inside I know I have defeated the pessimist me. I smile because I have begun moving forward again towards the light at the end of the dark tunnel where I got stuck.

It has been over a month now when I felt like something stole the motherhood in me. But recently I have realised that motherhood has never been stolen away from me. Although I have not been able to do almost everything that I used to do as the mother of my children, the mother in me has always loved them so dearly.

They say GBS has no cure. I say these two boys are the cure that any medical experts haven’t discovered yet.

I have realised that I have still sacrificed a lot as their mother. Putting them in a childcare centre has been a huge sacrifice for me. It had never been part of my plans to put them under the care of other people. However, it has been what is best not only for them but also for me and their Daddy. My husband has somehow been able to work for a little more hours for two weeks now (still not full time since he needs to take me to doctor sometimes). And I have been able to focus more on my recovery — therapies and my most needed rest.

My very young boys happily enjoying their freedom to explore the world away from me and their Daddy

Moreover, the best thing that has ever happened these days is how my young boys have seemed to be able to show their resilience and adaptability during this tough time that our family has been facing. I have even received a lot of overwhelmingly high praises about them. Nowadays, the world has seemed to make me realise how blest I’ve been with very beautiful children.

Yes, my children have always been the positive motivating force since they came into my life. I remember I even told my neurologists while I was crying to them for several times: “I wouldn’t mind and I wouldn’t care if I stay like this for the rest of my life if I’m not a mom. I could even die anytime soon. But I am a mother, you have to know what’s really going on because I’m sure once you know it, you’ll be able to tell me what we have to do and I will do every single thing that I will be asked to do.”

So now, I have three or four therapy sessions a week and I have different  sets of exercises that I need to do several times a day. And I don’t mind doing them all because that’s the only way for me to get back to being the kind of mother that I used to be.

Yesterday, I was able to hold my baby upright for several minutes…while sitting, of course. ❤❤❤

These days, I’ve been able to play a little with my boys when they are home. I’ve been able to (partially) change their nappies and clothes sometimes. And yesterday, I was able to hold my baby upright while sitting for several minutes after my husband handed him over to me. It was such a blissful moment!

Indeed, every cloud has a silver lining… even the darkest one. Yes, even the darkest cloud has a silver lining.

Do You Have Complaints About Your Wife?

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If you are a husband who keeps on complaining about your wife because of any of the reasons below, I have something to tell you.

  • Wife sleeps at night right away because she got too tired looking after the kids and/or doing all the household chores all day.
  • Wife is too tired from work and only buys takeaway food for dinner.
  • Wife doesn’t clean the house because she’s been looking after your small children.
  • Wife doesn’t have energy at night because she also came from work.
  • Wife smells like garlic and onions because she cooked meals for the family.
  • Wife doesn’t meet your expectations.
  • Wife is not perfect.

Now this is what I want to tell you: STOP COMPLAINING! Moreso, STOP CHEATING ONLY BECAUSE YOUR WIFE ISN’T PERFECT!

I now have all the rights to say this to you because you are all lucky if you are the husbands of those kinds of wives that you are complaining about.

Because in all honesty, MY HUSBAND DOES EVERYTHING FOR ME AND OUR FAMILY for one month now.

He works to provide for us then he looks after me and our children then he does all the household chores. Believe it or not, he does!

He cooks all our meals every single day. He prepares our boys’ lunchboxes. He washes the dishes. He does grocery shopping for us. He washes our clothes. He hangs them to dry. He cleans the house. He drives for us. He takes me to the doctor. He takes me out for lunch or dinner. He attends Playcentre session with our son. He attends Playcentre meetings. He coordinates with our sons’ educators. He gives our baby a bath and showers our toddler every night. Etcetera… etcetera… etcetera!!!

And he cheerfully plays with our sons ❤❤❤

Does he complain? Yes, he sometimes complains that he is tired. Does he complain about me? NO!

So if you’re a husband and you complain so much about your wife just because she cannot do all the things that you expect her to do, you have no rights to complain about your wife! STOP COMPLAINING ABOUT YOUR WIFE!