Tag Archives: motherhood

An Opportunity To Help

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32-year-old mom in the Philippines who got paralysed for FOUR years now

I am writing this blog with hope that this can find a way to help another mom who has been suffering with somewhat similar illness like mine for four years now. She’s now 32 years old with one daughter who’s almost 7 years old now. I met her only last night when she sent a message to me after reading my blog. She’s the wife of a grade school classmate of mine.

Screenshots of her messages telling me what happened to her

Her suffering started before dawn on 2nd of March 2013. She said that it all started with severe pain on the left part of her back and she couldn’t breathe easily. They waited for sunrise before they dropped their then 2-year-and-8-month-old daughter to their mom’s house on their way to hospital. While she was preparing, her left arm got numb. As they approached the hospital, she felt that she was losing her balance and when it was time to hop off from the jeepney, she couldn’t lift herself up anymore so her husband had to carry her already.

They spent the whole day in the emergency waiting for an available room. When she was finally in the room that night, she reached  the point of full paralysis. It was only her head that she could move. She was in the hospital for two weeks where several tests were done and every test result was normal. The doctor told her that what she got was “transverse myelitis”. (I don’t know what it is but by the sound of myelitis, it could be an inflammation of the myelin sheath…oh, I’m not a doctor!) She was told that there’s NO cure and therapies should be done so she can possibly recover.

Apparently, they have been financially incapable of paying for the therapies since her husband had to leave work as he’s the one looking after her. Her husband needs to carry her until now as she is still not able to stand up.

What a heartbreaking story!

I hate to say this but her story has made me feel how lucky I still have been despite my current condition. I feel sorry for her that her condition was that severe. I feel sorry for her because she lives in a place where medical benefits are not as good and enough as I’ve been receiving here. I believe that if only she was able to continue undergoing the necessary therapies, she might’ve recovered — if not fully, at least she might’ve been able to stand up or even walk.

If you’re reading this and if you think of any possible way that we could help her, please comment below. She said that her illness has made her and her family’s world to crumble down. So if there’s any way that we could be of help, let us help to rebuild their world.

With her very caring and loving husband who was my classmate in grade school

To you, my new friend, please hang in there and know that you’re not alone. Sending my prayers to you… and let us both hope for the best!

This Thing I Call The Alternative Motherhood

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Me and my 6-month-old love ❤❤❤

Motherhood itself can already bring heaps of different kinds and levels of struggles. Being physically weak because of my health condition now has brought me to a whole new level of motherhood — both positively and negatively.

Sometimes, I feel like I am completely useless. Many a time, I feel so helpless. Most of the time, I feel guilty not only because I can’t be of any help but because my moods have become so terrible and my patience is all gone.

But then I realised that I need to find alternative ways so that I can still do the things that I used to do for my two very young boys.

Recently, I discovered that I can still let them sit on my tummy while I’m lying down so I can play with them.

How I play with my two loves ❤❤❤

Sometimes, doing crazy and funny things with them can make all of us happy. Yes, I don’t need to use physical strength all the time to have fun with them.

Me and my 2.5-year-old love ❤❤❤

And it’s been two days now since I’ve been able to comfort our teething baby and to put him to sleep by simply touching and massaging him while we lie down on our bed.

The things that I do now as a mother are not the same things that I had normally done before I got this weak. The things that I do now are the things that I can do with the daily new normal me. And this is what I call an alternative motherhood.

I Miss The Mother That I Was

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It was in the last quarter of 2013 when I learnt that I was pregnant with my first child. From then on, every single aspect of my life started to change.

Although I’ve still had plans for my own future, my family, particularly my children, became my topmost priority. My husband and I agreed that I stay at home full time to look after our children. We joined in Playcentre where I became not only a mother to my children but their first educator too.

Although I sometimes miss my life before I became a mother, I have loved being one. No matter how exhausting it could be sometimes, being a mother has given me so much joy. Motherhood has made me experience what true happiness is even if it meant sacrificing a lot. It has made me feel that I’m finally fulfilling my real purpose in life after pursuing too many different options in the past.

Despite the two difficult pregnancies and childbirths, it felt like everything was in the right place. Despite our daily struggles, it felt like we’re living a beautiful life.

I managed to still continue completing another course at Playcentre. I managed to attend the Playcentre sessions with a toddler and a baby. I managed to enjoy working with the other Playcentre parents. I felt like I was already on the right path to fulfill my all-time ambition of becoming a preschool teacher too.

And then a little over five months after giving birth to my second child, something happened in my body. My immune system messed up with my nerves and muscles. It has made me weak and incapable of performing my tasks. At first, I thought it affected only my lower extremities and swallowing. During my fourth day in the hospital, I couldn’t keep up carrying my baby like I used to. Fifth day came and I couldn’t lift him up from the bed anymore. Sixth day came and my upper extremities were already struggling in changing my boys’ nappies. And I had to completely stop breastfeeding.

Deep inside, I was agreeing with my doctors that I should stay in the hospital but I did my best to convince them to allow me to go home. I was itching to go home because all I wanted was to be with my boys day and night. But I was wrong.

Today is the third day that my husband has to drive our baby to a different house to be looked after by a very kind couple for almost nine hours while I’m at home. Today, we are going to visit a preschool where we can enrol our firstborn, which was totally not part of our plans for the very near future.

I decided not to work to become a full-time stay-at-home mother. But now, I’ve not been able to take on that role. I’ve missed carrying my baby. I’m afraid I’m not going to witness the first time that he’ll crawl or even the first time that he’ll try to stand up or sit up. I’m afraid I won’t be the one to guide him in taking his first steps.

But I have to be honest and, yes, to be gentle with myself. I am not the best person to look after my boys at the moment and neither is my husband since he needs to work. All these unwanted decisions are for the well-being of everyone in our family. I can get enough rest and time that I need to focus on my recovery. My baby will be looked after better and he can have as much cuddles as he needs. My preschooler can play in the best way possible without being disappointed when he wants me to play with him but I can’t. And my husband can focus at work.

I believe that this too shall pass but I pray that it is going to be really, really soon. I only want to do the things that I was doing as a mother. I tremendously miss being the mother that I used to be.

I Wish You Came Into My Life 15 Years Ago

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I was born when your grandma was only 22 years old. She was working then. I can still remember I had Yaya Two and Yaya Uding (well, she’s actually my beloved late Tita Uding). Most likely, I had Yaya One since I had Yaya Two. As I grew up, I had to live with your great grandma and your Mama Beth and Lola Nini (my aunts) because Lola Weng was working. Eventually, your grandma had to stop working despite having a grand promotion at hand because your grandpa wanted her to become a housewife to look after me, your uncle and aunt.

Because of that, I promised myself not to get pregnant until I achieved all my career goals and until I got tired of hanging out with my friends. And I succeeded. I didn’t get pregnant until I was 32 with my boyfriend then for 8 years who has been my husband and now your Daddy.

But now that I’ve been this sick and weak, I wish I had you 15 years ago. By now, I would’ve already taken you to several different places and countries. I would’ve seen you join and even win in different competitions. I would’ve watched you join in championships in different sports. I would’ve watched you in musical or dance recitals or even in stage plays. I would’ve now been looking at your framed certificates of appreciation for being such good friends to your classmates. I would’ve heard too many praises from your friends’ parents. And I would’ve even been called by the school principal because, yeah, you were involved in a fight!

But it would’ve been totally different if you came into my life 15 years ago. I might have been a totally different person then. I might have been a completely different mother. I might have not made the choices that I’ve made now as your Mommy. I might’ve been a working mom. And you might’ve been spending most of your preschool days with different people because I was in the office climbing a corporate ladder.

And you might’ve been not the kinds of boys that you are now and I wouldn’t like it. I love exactly what and how you have been. So, I’m glad you came when I was already excited about having kids of my own. I’m happy that you came when I was already prepared to sacrifice everything for you. And I’m thankful to God for his perfect timing. Because you came into my life in the most beautiful way!

I love you both so dearly! And thank you for coming into my life in God’s perfect time.

My 2.5-Year-Old Son Made Me Cry Tonight

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If you have managed to read my very long first post here, you already know that I have Guillain Barré Syndrome.

GBS has made it hard for me to stand up from low-levelled seats. It has made it hard for me to sit up from lying position. It has made it difficult for me to swallow. It has made it difficult for me to shampoo and comb my hair.

Worst is that it has made me so incapable to lift and carry my two sons. It has made it impossible for me to play with my sons the way I used to.

Yes, GBS has made me feel so USELESS!

Who would want to be in the same situation that I’m in nowadays? Who wouldn’t feel sad? Who wouldn’t feel bad? Who wouldn’t wish to just die?

But each time that I see my very young boys, I can’t help but pray for a miracle. I pray that, in just a blink of my eyes, I am back to my normal self. I pray that, as I take my very next breath, I am strong enough to lift and carry my baby. I pray that, within a millisecond, I can dance, jump and run again with my toddler. I pray that all of these have just been parts of a bad dream and that, as soon as I wake up, I’ll feel that I have never experienced the wrath of GBS.

I know how and how much my sons have been affected by what has happened to me. My 5-month-old baby was crying earlier and my husband had a hard time to make him stop crying. We could hear our baby say “Mom-my! Mom! Mom-my!” Being able to hear my baby call “Mommy” now would have been a song to my ears. But how could it sound like a beautiful song to my ears if he’s saying that while he’s crying yet I couldn’t do anything? It became a torture to my heart!

And my toddler was making different sorts of requests that I could have done and given should I have not been suffering from GBS. This whole experience has stolen motherhood from me!

So tonight as I put my toddler to sleep, I whispered to him, “Sorry, Mommy got sick. I know it’s been hard for you.”

“Don’t worry, Mommy. I love you!”

He said. Then he touched the back of my neck and pulled me towards him and hugged me so tight. All I could say was “thank you” and I started to cry so hard. With that he replied before kissing me on my forehead,

“It’s OK, Mommy. Don’t worry, be happy. Gabrian here. I love you.”

 

I then realised that I must have done something really good in my life.