The Labyrinth in My Mind

I’ve been wanting to write since after my appointment with my doctors earlier today. There’s so much that I would like to write. But I don’t know how to start. I don’t know exactly what to write about.

 

Should I write about exactly what the doctors discussed with me? Should I write about the special blood test result that they already received from UK and Australia?

 

Should I write about my single-fibre EMG and Nerve Conduction tests that were done earlier? About how it felt to have a needle inserted into my muscles and being moved around my muscles with those tingling electric shocks?

 

Should I write about acetylcholine? And what should I write about acetylcholine? Its formula or IUPAC name or molar mass or its chemical structure that I learnt from Organic Chemistry and Biochemistry classes back in Uni? Or should I write about how it was discussed by my doctors today?

 

Should I write about Myasthenia Gravis? What about that? About how it can present itself as Guillain-Barré Syndrome? About the medicines that I might need to take, which I hope I wouldn’t have to because once I take such then there’s another medicine to take to prevent the side effects of the main medicine?

 

Should I write about me having to wait for another set of days until the other special blood test results arrive from UK? Or about the scan that should be done on my thymus gland and why it should be done?

 

If someone dares to get into and to explore inside my mind now, he or she might feel how it is to be in a labyrinth.

 

Just when I thought that I have been recovering big time from Guillain-Barré Syndrome, the doctors discussed with me what my condition has been most likely instead of GBS.  And as if GBS was neither rare nor complex enough, the doctors consider that my condition is the rarer and more complex one. The truth is that even if I’ve never wanted to have GBS, I’d rather have it than MG.

 

Looking at the bright side, at least my doctors don’t simply make me take any medications unless all symptoms and test results perfectly match one another. And this whole thing has made me witness the real life “Grey’s Anatomy” (Neurology edition).

 

I’m still hoping and praying for the best.

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