If you have managed to read my very long first post here, you already know that I have Guillain Barré Syndrome.
GBS has made it hard for me to stand up from low-levelled seats. It has made it hard for me to sit up from lying position. It has made it difficult for me to swallow. It has made it difficult for me to shampoo and comb my hair.
Worst is that it has made me so incapable to lift and carry my two sons. It has made it impossible for me to play with my sons the way I used to.
Yes, GBS has made me feel so USELESS!
Who would want to be in the same situation that I’m in nowadays? Who wouldn’t feel sad? Who wouldn’t feel bad? Who wouldn’t wish to just die?
But each time that I see my very young boys, I can’t help but pray for a miracle. I pray that, in just a blink of my eyes, I am back to my normal self. I pray that, as I take my very next breath, I am strong enough to lift and carry my baby. I pray that, within a millisecond, I can dance, jump and run again with my toddler. I pray that all of these have just been parts of a bad dream and that, as soon as I wake up, I’ll feel that I have never experienced the wrath of GBS.
I know how and how much my sons have been affected by what has happened to me. My 5-month-old baby was crying earlier and my husband had a hard time to make him stop crying. We could hear our baby say “Mom-my! Mom! Mom-my!” Being able to hear my baby call “Mommy” now would have been a song to my ears. But how could it sound like a beautiful song to my ears if he’s saying that while he’s crying yet I couldn’t do anything? It became a torture to my heart!
And my toddler was making different sorts of requests that I could have done and given should I have not been suffering from GBS. This whole experience has stolen motherhood from me!
So tonight as I put my toddler to sleep, I whispered to him, “Sorry, Mommy got sick. I know it’s been hard for you.”
“Don’t worry, Mommy. I love you!”
He said. Then he touched the back of my neck and pulled me towards him and hugged me so tight. All I could say was “thank you” and I started to cry so hard. With that he replied before kissing me on my forehead,
“It’s OK, Mommy. Don’t worry, be happy. Gabrian here. I love you.”
I then realised that I must have done something really good in my life.